Category Archives: Support System

Stable But Anxious

Anxiety is kicking my butt. So is EMDR (Eye Movement Desensitization and Reprocessing – read more here: https://www.healthline.com/health/emdr-therapy). I’m concerned that I need additional meds to deal with the constant high anxiety since coping skills and current meds are not keeping my distress at bay. But I have been in a stable mood state for the last couple of months! I’m at baseline again for the third time in a year – the most stable I’ve been since diagnosis in 2010. I’m amazed, and astonished, and grateful.

Instead of the ups and downs of mania and depression, I am plagued with high levels of anxiety right now. A great deal I can attribute to EMDR. There is anticipatory anxiety the day or two before my weekly session. There is the anxiety brought up in the session itself, deliberately, in fact. Then there is the anxiety for days afterwards as I process old memories that connect to current relationships and feelings and suicidal thoughts. The goal is reduction of the suicidal thoughts, and in order to get there I have to go Through the memories to reprocess them. So, anxiety arises. Which sucks.

There are so many racing thoughts and then feelings that are causing anxiety in addition to EMDR. One major thing is the upcoming transition in living situation from a family home to a significant other’s home. Besides changing address everywhere (I made a list!), there are community resources that will change too since the new location is an hour away. Picking up and moving is so damn hard! Changing communities is anxiety-provoking! But I’m going to a healthier place for me, where I can be myself All the time. The price is additional anxiety about breaking up interdependencies and about creating community again.

Throughout each day I’m dealing with higher generalized anxiety plus these recurrent larger anxieties. There are normal jitters about a newer relationship, and normal jitters about owning a car again. There are abnormal jitters about a tendency for delusions and mania in December. Just life itself and making it through each day and night is causing jittery anxiety. And one of my major coping skills and time fillers – reading – is still on hiatus. The letters and sentences jump around and I can’t focus enough to make sense of them. One time when this happened during this bipolar time, it took two years!!! to get back to reading. It’s so bad that I can barely read Facebook or Insta posts. And I can’t even read this post to check for readability and typos. The lack of reading is causing anxiety too. Great.

My Therapist Told Me To Write This

I’m having a hard time telling anyone close to me about my suicidal thoughts. So my therapist told me to write about my feelings. I’m not talking about them because I don’t want them to be real, maybe? I don’t want the ECT to be wearing off? and I don’t want anyone to encourage me to do ECT again? All of that probably.

But I have to remind myself that I’m in a new place with my bipolar and its treatment. I’m in control of my treatment. And if I want to use only medications, then that’s my choice. And if my psychiatrist can’t find medication to help the OCD suicidal thoughts, then I’m back to discussing how to manage them with my therapist and using coping skills.

So here I am using the writing coping skill as instructed by my therapist. I’ve got frequent images of one plan to kill myself in my head, and negative self-talk swirling through my mind. People would be better off without me, type of stuff. I can tell myself my brain is lying, but I still believe the negative self-talk for a while. And when the self-talk and images coincide – as they do regularly – I find myself rehearsing the plan, or starting and then stopping. I really don’t want to die, do I? It’s hard to tell. With all the crap in my head.

I haven’t been able to tell my family, or to contact the Crisis Text Line (741741) or the Natl Hotline (1800-273-TALK). Obviously I contacted my therapist, who told me to write at the minimum. I did tell my church and my online community of friends. After suffering in silence for two days. I’m tired of suffering and I’m scared to tell.

Shootings, Suicide, and Spirituality

I am sick to death of shootings that kill or injure ANY number of people, not just the ones that “score” enough deaths to be considered “mass” shootings. My heart hurts. My soul is heavy. My body itches to DO something to ease the enormous pain my country is in.

This is not a new feeling. I can remember the ache as far back as childhood when gang violence in the cities was more likely to make the news than a lone wolf, cis- and young white male with a high-capacity gun was.

Yes, I said it. The problem is not just guns, though background checks and limiting them will make a huge difference. The problem is not just access to mental health treatment, though some of the shooters may not have been in treatment for their mental illness. No. I believe the current problem lies in cis- white, patriarchal supremacy that is replete through American culture.

Unfriend me if you wish. I just needed to say it. Because ever since we had a week full of violence in California, Texas, Ohio, and Illinois, just to name the ones I happened to hear about, I’ve been quiet and hurting, nauseous and aching for the pain, loss, and fear. I’ve also felt more suicidal, more often than usual, with the accompanying feelings of emptiness and lack of purpose.

Then a notorious, alleged criminal is said to have died by suicide (many think not, icymi). Just having suicide in the news is a trigger for suicidality for me. And now he won’t face the justice likely to have come down on him for atrocious acts. Many hearts scream for justice, and I hear them. And death seems a real possibility again.

I talked with my therapist about the suicidal thoughts and was reminded of coping skills that I can use before the feeling gets intense. Going to church is one of those coping skills, something I do to be social, to be encouraged toward ethical action, and to be inspired by the good that IS in the world. Then today, at the beginning of a service to recognize the grief and pain and urge to act because of the shootings, the suicidal feeling came back again. In my last community, I would very often drive to church with hope, only to leave suicidal. That hasn’t happened much in my current community, but here it is, happening again.

I’m using coping skills – such as blogging about my feelings – to ride out the suicidal feelings. But my heart still aches, and my stomach is nauseous.

A Resolution – Finally

I felt alone. It seemed everyone around me wanted me to continue with ECT. Yet it’s my decision. It’s my body. I live with the illness – and it’s consequences. I live with the treatments and the symptoms of anxiety they cause in me. Here is what I decided after several conversations with my therapist, my psychiatrist, the ECT team, and my mom. I even read medical journal articles.

I want my life back. I want the anxiety I’ve been living with to be back to reasonable levels that I know how to live with. My mood has been stable and my psychiatrist expects it to stay that way. I hope he is right! I’d like to learn how to live with a mood that experiences many emotions without dropping or accelerating into a mood state.

I decided NOT to do ECT anymore. I want to try medications again if my mood becomes depressed or manic again, or if I become suicidal. I have to get the port in my chest removed again since I no longer want to do ECT. (The port was used to access a vein so that nurses didn’t have to try multiple times per treatment to create an IV.) ECT has been helpful for getting my mood to baseline, and perhaps it would help in the future too. I’m just not sure, I don’t like the reaction I have to treatments (days of anxiety), and I’d rather work with pills. ECT had been a last resort when I started it last fall, and resumed it this spring and summer. I just don’t think it has to be my Go-To treatment method anymore.

I will be super vigilant about routine, schedule, taking meds, nutrition, exercise, coping skills, and sociability as I try to maintain a stable mood with these things that have Not proven to work before. But I will do what is personally in my power to care for my multiple mental illnesses. I will work with my psychiatrist for meds and therapist for coping and exploration as needed. I will reach out to others for support on a regular basis. So don’t be surprised if I contact YOU!

I’m taking my life back.

How Best to Take Care of Myself

Anxiety has been my constant companion at an elevated state since the f*** up at ECT nearly 10 days ago. If my anxiety was at a 9 last week at therapy, it was an 8 this week. Ooooo – totally getting better. Not. I cried through most of the session again this week. And off and on the rest of the day afterward.

This is what I am holding on to. My therapist reminded me that it is my decision whether or not to have ECT. I have been through trauma related to the anesthesia of ECT that I keep reliving every.single.day multiple.times.a.day. Leading to panic and anxiety going up and down all the time. I no longer feel safe in my home or alone. The anxiety is waiting to get me, sometimes as an anxiety attack or as people or things waiting to jump out at me. While ECT has helped my mood like no drug ever did – I found baseline for me! – it has now ruined my life, in my mind. I might be exaggerating, yet I’m miserable now.

Before my next treatment, I have a second opinion appointment which is designed to see if ECT is helping and still beneficial for me. I promised my therapist and mom, I will tell him everything, from how much better my mood is, to the plan to do maintenance treatments so the results last longer, and now how the anxiety from the anesthesia gaff has traumatized me and the anxiety is nearly unbearable.

While I want the decision from me and the second opinion dr to be to stop ECT, I will keep an open mind. Maybe I need to stop for now so the anxiety can subside. Maybe I would need to start up again in the future. Maybe I will ever do it again, and will play pharmaceutical roulette with my psychiatrist if I need it. I just know I Need To Take Care Of Myself. And I’m holding on to ECT being OVER.

Anxiety Blows

I deal with anxiety on a daily basis, besides the bipolar disorder. I have generalized anxiety disorder including some form of OCD. I take meds for it, and I use a lot of grounding and mindfulness skills to work through the moments of unease and of panic.

The whole process and concept of ECT weirds me out and makes me anxious, starting several days before treatment. I have trouble managing the anxiety. And then I had the unfortunate experience of waking up after anesthesia was administered and before the procedure started to a feeling of not being able to breathe and not being able to move or talk to tell anyone because of the paralytic administered for the treatment. The experience lasted only a handful of seconds but scared the bejeezus out of me. And so now I Really Hate ECT and get super anxious leading up to treatment. Doggone it that it works for me!

This experience happened to me again last Thursday. I talked to my psychiatrist and to the ECT team about my anxiety-attack-level of panic, but it was my therapist the next day who Finally had something sympathetic and helpful to say! My anxiety is normal and doing what it is supposed to do – warn me of danger – he said. And all the coping skills I’ve learned and practiced for mood shifts and crises Will Work for this anxiety too. Now that my mood is stable, I have the opportunity to use these skills for naturally occurring emotions, and to deal with my anxiety disorder.

Hallelujah! Something to tell myself in the moment, as well as “tricks” to try when the anxiety prevents me from being in the moment, such as writing about the anxiety, both to get support from my support system, as well as to sort out what I’m feeling, and get some distance from what I’m feeling. And What Am I Feeling? Vibrating in the center of my solar plexus. Shallower breathing than I should be doing. Thoughts jumping from partially-formed thought to an awareness of panic that stops all thoughts. Fear. Paranoia. Failure.

Anxiety Blows.

Self Care – Hospital and ECT

I was in the hospital the first three weeks of April after my last post. I took care of myself by going in the hospital to be kept safe from my suicidal impulses and to start ECT again. As a common meme says, “It’s ok to ask for help. It’s ok to start again. It’s ok to say no. It’s ok to rest. It’s ok to let go. It’s ok not to be ok.” Going in the hospital and starting ECT again was telling myself it’s ok not to be ok, and it’s ok to rest and to start over again.¬†Having had success with ECT at the end of 2018, my psychiatrist recommended a course of it again including maintenance to hopefully prevent a mood crash again after only a couple months of stability.

Now I am out of the hospital, adjusting to life without suicidal thoughts, and have had 13 treatments. My mood is holding steady between treatments and suicidal thoughts are drastically reduced. I can’t say I’m feeling as good as I had been after the last course of ECT. But I did¬†just go from ECT 3x/week to ECT 2x/week. I’m staying the course by keeping up treatments even though I don’t really want to do ECT. Something about it just weirds me out. But I really want the experience of feeling good for an extended period of time, and ECT seems to be the main treatment that leads there.

I continue talking with my therapist over the phone on Fridays. And my mom is my companion for ECT, driving into the city and then keeping watch over me as I recover. I’m able to reach out to these thick branches of my support system, as well as some smaller limbs too, as I try to feel not alone. I wish I felt good and strong and happy again, but at this point I at least have hope that it will happen again as ECT continues.